Thursday, September 19, 2013

~*Spina Bifida Clinic*~

To sum this up quickly but efficiently we learned that Dalton is healthy with great pressures in his brain from his Chiari 2 and while his Spinal Cord is tethered he won't need it released until he begins showing neurological symptoms. Also, his shunt is working beautifully. 

Analina's spine held many surprises for us. In the urgent/emergent category. She has Myelomeningocele and, also, Diastematomyelia. Her spinal cord splits completely in two and goes around a bony spur and reconnects underneath it. Her spinal cord is tethered in two places and she is already showing neurological symptoms and because of that we need to quickly get a few tests done first then schedule surgery.  

Analina will be fitted with a new/better AFO (DAFO Turbo). She will be given both OT and PT. 

The day was incredibly long and overwhelming but we are grateful for answers for our sweet ones. 

Psalm 41:13

Praise be to the Lord, the God of Israel,
    from everlasting to everlasting.
Amen and Amen.
 

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